Supporting the responsible, ethical and efficient use of personal data for research.
Research using personal data is taking place right now. Whilst there are a number of proposed legal and technological solutions to working with personal data for the benefit of research - these solutions aren't fully developed and tend to focus on only one part of the process - for example, Data Trusts.
How data is managed and processed is as important as where it lives, and right now, there are no solutions that consider the full end-to-end process. This makes navigating the world of data donation a timely and confusing process for any researcher.
With a framework and go-to network of data donation specialists, researchers will be able to readily access a clear set of standards to follow and a network of peers offering advice and experience. In turn, individuals and institutions will feel confident in donating their data for research - enabling even more life-changing research projects to be undertaken.